Seeing your GP for symptoms of neuroendocrine cancer

Even if you're worried about what the symptom might be, don't delay seeing them. If you're finding it difficult to get an appointment you should keep trying. Your worry is unlikely to go away if you don’t see someone about it. 

The symptom might not be due to cancer. But if it is, the earlier it's picked up the higher the chance of successful treatment. You won't be wasting your doctor's time. 

Try not to be embarrassed. What you tell your GP is confidential. Doctors are used to discussing intimate problems and will try to put you at ease.

What are the symptoms of neuroendocrine cancer?

Your symptoms depend on where the cancer starts to develop in your body. This is called the primary site. Symptoms also depend on whether your neuroendocrine cancer makes and releases abnormal levels of ​hormones​ .

Neuroendocrine cancers can develop in different parts of the body including the:

• lung

• ​small bowel​

• large bowel (​colon​) and back passage (​rectum​) 

• stomach

• ​pancreas​

You can read more about neuroendocrine cancer symptoms in the section for each type of neuroendocrine cancer. We have information about the different types of neuroendocrine cancer, depending on where they develop in your body.

Doctors name some neuroendocrine tumours (NETs) after the type of hormone that they make. We also have information about some of the different types of NET that start in the pancreas and ​digestive system​.

Select your type of neuroendocrine cancer

Getting the most out of your GP appointment

You may have your appointment in person, over the telephone or as a video call. However, when you speak to your GP it can be difficult to remember everything you want to say. These tips will help you get the most out of your appointment.

Tips

• Write down your symptoms including when they started, when they happen and how often you have them.

• Write down anything that makes them worse or better.

• If you would prefer to only see a male doctor or female doctor, ask when you book the appointment - the receptionist will tell you if it is possible.

• Tell your GP if you are worried about cancer.

• Tell them if you have any family history of cancer.

• Have a friend or relative with you for support - they could also ask questions and take notes to help you remember what the GP says.

• Ask the GP to explain anything you don’t understand.

• Ask the GP to write things down for you if you think it might help - if you have a telephone or video appointment ask for the information to be left at reception for you to pick up.

This short video goes over how to get the most out of your phone and digital appointments with your doctor.

What happens during your GP appointment

Your doctor needs to build up a picture of what's going on. So, they will ask you some questions. These include:

• what symptoms you have

• when you get them

• whether anything makes them better or worse

They will ask you about your general health and any other medical conditions you have. 

Your doctor might take your blood pressure and pulse (heart rate). Depending on your symptoms, they may also do a general physical examination. They feel for any areas that might be swollen or might not feel normal, including a lump. If you have any pain they will feel those areas. When your doctor examines you tell them if it feels tender. 

They might also listen to your chest to find out if it sounds normal. For example, they can listen for signs of fluid collecting.

After your examination, your doctor might arrange for you to have some blood or urine tests. These are usually done at the GP practice. They might also refer you to the hospital for tests or to see a specialist.

Questions you might want to ask your GP

• Do I need to see a specialist? Is it urgent?

• When will I see them?

• Where will I see them?

• Will I find out about my appointments by post or telephone?

• Do I need tests? What will they involve?

• How long should I expect to wait?

• Where can I find out more about tests?

• Do I have to do anything in preparation for this test?

• When will I get the results and who will tell me?

Your GP might not be able to answer all of your questions. They will tell you what they can at this point. Not knowing is difficult to cope with and can make you anxious.

Speaking to a friend or relative about how you feel might help.

If your GP doesn't think you need any tests or a referral

• Can you explain why I don’t need to have tests or see a specialist?

• Is there anything I can do to help myself?

• Do I need to see you again?

• Who do I contact if my symptoms continue or get worse, especially during the night or at weekends?

What happens next?

After your examination, your doctor might need to refer you to hospital for tests. Or they might refer you directly to a specialist.

The type of specialist you first see depends on your symptoms.

Make sure you know what happens next. Make another appointment if your symptoms don’t clear up, or if they change or get worse.

Find out about referral to a specialist

Hospital tests

Depending on your symptoms, your GP or specialist can arrange some hospital tests, such as:

• ​endoscopy​

• ​bronchoscopy​

• chest x-ray

• ​CT scan​

Get more information on tests to diagnose a neuroendocrine cancer

How to find a GP

If you don’t have a GP, you can find a doctor’s surgery in your local area by going to:

• NHS website - England

• NHS24 - Scotland

• NHS 111 Wales

• Health and Social Care - Northern Ireland

Making an appointment

To make an appointment you:

• can telephone your GP surgery

• can book an appointment online through your GP surgery website (if they have one)

• may be able to use the NHS App

• may be able to go into the GP surgery and make an appointment in person

Find out more about the NHS App and how to register

If it's difficult to get through to the GP surgery by phone try calling at a different time of the day. Or try calling on a different day. It could be particularly busy in the mornings or on a Monday. Although it can be frustrating you should keep trying. Some GP surgeries offer to call you back if you are in a telephone queue.  

You might be able to go to your GP surgery to book an appointment. But not all surgeries offer this service. It may help to see if your GP surgery has a website - this will explain the best way to get an appointment. 

You don’t have to tell the receptionist why you want to see the doctor, although sometimes it might help to explain your situation.

The reception team are trained in offering you an appointment with the most suitable professional at the right time. Depending on your symptoms, you might see another healthcare professional such as a nurse first.

You may be asked to attend in person, especially if your GP needs to examine you. Or the receptionist may offer you a telephone or video appointment first. If your GP needs to see you after this they will ask you to make another appointment. The receptionist will give you a date and time for this. 

Accept a booked appointment even if you think it’s a long time to wait. You could ask about cancellations if you're able to get to the surgery at short notice. Check that the surgery has the right details for you, including your telephone number and email.  

Contact the GP surgery again if your symptoms change or get worse.