Neuroendocrine cancer

Neuroendocrine cancers start in nerve and gland cells that make and release hormones (neuroendocrine cells). They can develop in different parts of the body, such as the stomach, bowel, lung or pancreas. The 2 main groups are neuroendocrine tumours (NETs) and neuroendocrine carcinomas (NECs).

We don't know what causes most neuroendocrine cancer. But we know there are some inherited conditions that can increase your risk.

You usually start by seeing your GP. They might refer you to a specialist doctor and organise tests.

There are many different types of neuroendocrine cancer. They are usually named after the part of the body where they develop.

A pathologist reports how abnormal the cancer cells look (differentiation) and how quickly they are growing (grading). Your stage is the size of the cancer and whether it has spread.

Carcinoid syndrome is a group of symptoms including flushing of the skin and diarrhoea. It is caused by some NETs that produce large of amounts of hormones.

Treatment depends on the type of neuroendocrine cancer you have, where it is, its size and whether it has spread (the stage).

Survival (prognosis) depends on several factors. This includes your type of neuroendocrine cancer, where it is in your body, and whether it has spread.

Researchers are looking at improving the diagnosis, treatment and quality of life of people with neuroendocrine cancer.

Practical and emotional support is available to help you cope with neuroendocrine cancer.