Vulval cancer resources and support organisations
There are lots of organisations, support groups, books, videos and other resources to help you cope with vulval cancer and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Vulval cancer support organisations
Go Girls offer support to women with gynaecological cancers. They are also raising awareness and campaigning for better diagnosis and treatments.
Email: hello@gogirlssupport.org
The Daisy Network provides help, support and information for women who have early menopause.
Daisy Network
82a James Carter Road
Mildenhall
Suffolk
IP28 7DE
Email: info@daisynetwork.org.uk
The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.
Ask Eve telephone: 0808 802 0019
Ask Eve email: nurse@eveappeal.org.uk
General enquiries: telephone: 020 7605 0100 and email: office@eveappeal.org.uk
Vulval Pain Society is an information and support service for women with vulval pain and discomfort.
General support organisations
College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.
Telephone: 020 8106 9635
Email: info@cosrt.org.uk
A national charity offering information and support to anyone affected by lymphoedema. It has local support groups, a helpline and a website. It also produces a range of information including factsheets about lymphoedema and its treatment, videos about self management techniques for lymphoedema, and a newsletter.
Telephone: 020 7351 4480
Email: admin@lsn.org.uk
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Email: info@prda.org.uk
Switchboard provides an information, support and referral service for lesbians, gay men and bisexual and trans people - and anyone considering issues around their sexuality or gender identity. Their helpline is open every day between 10am and 10pm. They also offer a chat and email service.
PO Box 7324
London
N1 9QS
Phone number: 0800 0119 100 open from 10 am to 10 pm every day
Email: hello@switchboard.lgbt
A charitable membership body of health care professionals with an interest in the care and support of people with lymphoedema. Their resources include a directory of lymphoedema specialist practitioners.
Tel: 01452 790 178
Books
M Heffernan and M Quinn
Michelle Anderson Publishing, 2003
ISBN: 0855723327
An American book that deals with all aspects of gynaecological cancer. Gives concise information alongside women's own stories about their experiences.
Tara Parker Pope
Rodale, 2007
ISBN 978-1905744107
An American book aimed at helping to clear up some of the confusion around HRT.
Kathryn Petras
William Morrow Paperbacks, 2018
ISBN 9780380805419
The Premature Menopause Book provides the latest information on health and emotional issues, explores all of your options, lists resources, websites and support groups, shares the experiences and advice of women going through this experience, answers frequently asked questions and offers the support and understanding your needs.
Healthtalk.org
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
Find local cancer information and support near you
There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
Scotland
NHS Inform gives information about illness, treatments and NHS services for people in Scotland.
Wales
NHS 111 Wales gives health advice and information for people living in Wales.
Northern Ireland
The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland.
