Penile cancer resources and support organisations
There are many organisations, support groups, books, videos and other resources to help you cope with penile cancer and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
General support organisations and websites
Orchid hosts a forum for people affected by men's cancers.
Tel: 0808 802 0010 (helpline) or 0203 745 7310
Email: nurse@orchid-cancer.org.uk
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
Forward House
17 High Street
Henley-in-Arden
B95 5AA
Home Delivery Service Sign Up: 0800 031 5406
Home Delivery Service Existing Customers: 0800 031 5407
Email: help@bladderandbowel.org
College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.
Telephone: 020 8106 9635
Email: info@cosrt.org.uk
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Phone: 0300 123 1801
Email: enquiries@maggies.org
Relate offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. Clients are asked to contribute towards the cost of their counselling sessions according to their income.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.
European Association of Urology (EAU) provide patient information about penile cancer.
Books about cancer and treatment
You can find a list of other books about cancer, treatments, and living with cancer on our general reading list.
Dr Ian Banks
J H Haynes & Co Ltd, 2004
ISBN 978-1844251582
Written by a doctor, the Haynes Cancer manual is an optimistic book, featuring hints and tips for a healthy lifestyle as well as easy to understand information on all cancers affecting men.
A Ko, E Rosenbaum and M Dollinger
Andrews McMeel Publishing, 2009
ISBN 9780740786310
The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.
Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090805
Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2007
ISBN 978-0859699990
Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
J F Kelvin and L B Tyson
Jones and Bartlett Publishing, 2010
ISBN 978-0763777609
An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.
Jane Freeman
Sheldon Press, 2012
ISBN 978-1847091413
Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.
A Bloch and others
American Cancer Society, 2010
ISBN 978-0944235782
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
Dr Ian Banks
J.H. Haynes & Co Ltd, 2012
ISBN 1844256162
Written by a doctor, the Haynes Workshop Manual is an optimistic book, featuring hints and tips for a healthy lifestyle as well as easy to understand information on cancers affecting men.
James Gilbaugh
Simon and Schuster, 2008
ISBN 0743213440
A general guide to men's health issues, including common fears and anxieties and guidelines for maintaining good health.
Videos of people's stories
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
NHS
For general health advice and information.
