Cancer Data Patient & Public Community

Summary

Type of activity: Patient & Public Community

Organised by: Cancer Research UK

Location: Mostly online. There will be some optional opportunities to take part in face-to-face activities.

Time commitment: Flexible, you can be involved in as much or as little as you like.

Payment and Expenses: Payments are offered in line with our payment policy. Payments are offered depending on the time spent. For example, if you spend up to 2 hours completing consultations in one month you can claim £30 plus a £5 virtual allowance.

Eligibility: The Cancer Data Patient & Public Community is open to anyone, based in the UK, whether or not you have a personal experience of cancer or not.

Closing date: This is an ongoing opportunity meaning you can join this community all year round

Building and maintaining trust through patient and public involvement and engagement is a vital part of our Research Data Strategy. We have launched a new Cancer Data Patient & Public Community to bring people together who have an interest in sharing their views around data to support our work.

What’s the Cancer Data Patient & Public Community?

The Cancer Data Patient & Public Community works together with Cancer Research UK and other organisations to improve the use of data in cancer research, aiming for improvements in detection, personalised care and treatments. By bringing together those affected by cancer and the wider public, the Community uses lived experiences to shape research and promote transparent and ethical data practices. Through public consultations and co-designing research, we work towards a future where data-driven discoveries lead to better outcomes for all affected by cancer.

What to expect

You can be involved in as much or as little as you like. Some opportunities will need more time commitment than others. We’ll tell you how much time each involvement activity takes and how much payment is offered, so you can decide if it’s right for you. Some activities will take place online and some will be face-to-face. Here are some examples of the kind of activities you could take part in:

• Surveys
• Advising researchers on their research projects 
• Reviewing research funding applications
• Workshops, focus groups, and interviews,
• Steering Groups or ongoing panels
• Speaking at events
• Reviewing new resources aimed at improving the understanding of data
• Educational training and attending events to enhance your knowledge and confidence around data

Join the Cancer Data Patient & Public Community
 

Equality, inclusion and diversity in patient involvement

We value diversity and are committed to creating an inclusive space where everyone can be themselves and help shape our work. We actively encourage participation in our involvement activities and applications from people of all backgrounds, communities, and cultures and believe that a range of views and experiences will help us represent all people affected by cancer.