Resources and support for myeloma
Organisations, support groups, books, videos and other resources to help you cope with myeloma and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Specific organisations and sites
Myeloma UK is dedicated to funding research, providing information and supporting those with myeloma. They produce booklets and videos. Booklets are available on their website, or they will send you an information pack. They can provide a list of myeloma support groups in the UK. They have an online discussion forum and myeloma TV.
Helpline: 0800 980 3332 (Freephone Mon to Fri, 9.00am to 5.00pm)
Email: askthenurse@myeloma.org.uk
This website has information about clinical trials that are taking place in the UK and guidelines for the diagnosis and treatment of myeloma. This is really a site for researchers and doctors with an interest in myeloma. Much of the information is written in a very scientific way.
Blood Cancer UK funds research into leukaemia, lymphoma and myeloma. It also provides patient information booklets and leaflets that you can download or order from their website.
Support line: 0808 2080 888
Email address: support@bloodcancer.org.uk
Booklets and factsheets
Myeloma UK has a large range of publications covering different treatments and aspects of coping with myeloma. These are all available to download from their website. Or they can send you a copy in the post. Examples of their publications include:
- ask the Nurse: Bisphosphonates
- osteonecrosis of the jaw
- ask the Nurse: Practical advice for caring for someone with myeloma
- high dose therapy and autologous stem cell transplantation
- smouldering myeloma
- myeloma and the kidney
- myeloma – an introduction
- patients hints and tips book
- pain and myeloma
- serum free light chain assay
Many of Macmillan's publications are available as audio books.
- healthy eating and cancer
- talking to someone who has cancer
- your sex life and cancer
- LGBTQ+ people and cancer
- understanding myeloma
- understanding stem cell transplants using your own cells (autologous)
- understanding stem cell transplants using donor cells (allogeneic)
- managing cancer in the workplace
- help with the cost of cancer
- working while caring for someone with cancer
Bone marrow and stem cell transplantation
- blood stem cell and bone marrow transplants: the seven steps
- eating well with neutropenia
- watch and wait fact sheets
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.
