Neuroblastoma
It is extremely distressing to find out that your child has cancer. It can raise many different emotions. It is very normal to feel angry, sad, upset and shocked. It is such a lot to take in. You are likely to worry about whether they will get the right treatment, what will happen, and how you will all cope.
If you have other children most parents and grandparents worry about them as well. Practical help and support is something people nearly always need. For example, shopping or help with looking after other children in the family.
It is essential that parents and other close family also have support. Talking to friends and other members of the family can help you deal with your feelings.
Get information and tips about coping emotionally with cancer
We have more information about what to expect when your child is diagnosed. It also explains and signposts to information about:
working while your child is sick
financial support
schooling
emotional support
ways to help tell your child they have cancer
Go to my child has just been diagnosed with cancer
Neuroblastoma UK is run by the parents and grandparents of children with neuroblastoma. They have a befriending scheme for affected families.
Visit the Neuroblastoma UK website
The Children and Young People's Cancer Association (CCLG) work to coordinate national and international clinical trials. They were previously called the Children's Cancer and Leukaemia Group. They also provide information about cancer for children, young people and their families.
Phone: 0333 050 7654 Email: info@cclg.org.uk
The Children and Young People's Cancer Association website
The Future Fertility Programme Oxford is run by a team of doctors, researchers and tissue bank specialists. They are part of Oxford University Hospitals (OUH).
They aim to help children and young people at risk of infertility due to illness or treatment.
Read more about their services
Solving Kids' Cancer UK is a charity that provides information and support to families of children affected by neuroblastoma. They're also involved in funding and initiating research to improve treatment for neuroblastoma.
Phone: 0207 284 0800
Family support team: Email: support@solvingkidscancer.org.uk
Other enquires: Email: info@solvingkidscancer.org.uk
Solving Kids' Cancer UK website
Some organisations can put you in touch with a cancer support group. We have information about books, leaflets and other resources about cancer treatment.
Find more cancer organisations
Last reviewed: 24 Apr 2025
Next review due: 24 Apr 2028
Neuroblastoma is a rare cancer that affects children, mostly under the age of 5 years. It develops in early nerve cells called neuroblasts and often starts in the tummy.
Surgery, chemotherapy, immunotherapy and radiotherapy are the main treatments for neuroblastoma. Find out how doctors work out your child's treatment.
Researchers are looking at improving the diagnosis and treatment of neuroblastoma. Find out about the research that is happening.
Here are organisations and websites that help and support children with cancer and their family and friends.
Find out about what to expect when your child is first diagnosed.
Neuroblastoma is a rare cancer that affects children, mostly under the age of 5. Around 100 children are diagnosed each year in the UK. Find out more about the symptoms, tests your child might have, treatment, side effects, coping and research.
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