Neuroendocrine tumours

Neuroendocrine tumours (NETs) are rare tumours that start in neuroendocrine cells. This group of tumours are also called neuroendocrine neoplasms (NENs). 

Find out about seeing your GP, referral to a specialist and the tests you might have to diagnose a NET.

Treatment depends on the type of NET you have, where the tumour is, its size and whether it has spread (the stage).

Carcinoid syndrome is a group of symptoms that some people get when they have a neuroendocrine tumour (NET). These symptoms happen when the tumour makes large amounts of hormones.

Lung NETs are rare cancers that start in the neuroendocrine cells of the lung. Some types of lung NETs are called carcinoid tumours.

Stomach NETs are rare tumours starting in the neuroendocrine cells of the stomach. You might also hear them called neuroendocrine neoplasms (NENs) or neuroendocrine carcinomas (NECs). 

Small bowel NETs are rare. These tumours start in the neuroendocrine cells of the small bowel.

Large bowel and rectal NETs are rare cancers that start in the neuroendocrine cells. Some types of NETs are called carcinoid tumours.

There are different types of NETs of the pancreas. They are usually grouped into functioning NETs and non functioning NETs.

 MCC is a rare type of skin cancer that starts in Merkel cells. Its is also called a type of neuroendocrine tumour (NET). 

Get practical and emotional support to help you cope with a neuroendocrine tumour.