Bladder cancer resources and support organisations
There are many organisations, support groups, videos and books to help you cope with bladder cancer and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Bladder cancer support organisations
This charity is run by bladder cancer survivors and their families. You can join a support network and a confidential online forum. You can find information about how treatments might affect you.
This UK based charity gives information and support to people affected by bladder cancer. They can also give you details of support groups in your local area.
Tel: 0300 302 0085
Email: info@actionbladdercanceruk.org
This is a self help organisation that runs a network of groups throughout the country. They can arrange for someone who has had a urostomy to visit you before and after your surgery.
They also provide booklets about what is a urostomy, guidance on diet and exercise, travel and sex life after a urostomy.
Tel: 01386 430140
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
Forward House
17 High Street
Henley-in-Arden
B95 5AA
Home Delivery Service Sign Up: 0800 031 5406
Home Delivery Service Existing Customers: 0800 031 5407
Email: help@bladderandbowel.org
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Email: info@prda.org.uk
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Disability Rights UK provides an information and advice service and campaigns for disabled people's rights.
They also provide a Just Can't Wait card and radar keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry. They also have several helplines providing information and advice.
General enquires phone: 0330 995 0400
Email: enquiries@disabilityrightsuk.org
The Department for Work and Pensions have information on the Industrial Injuries Disablement Benefit for people that have been exposed to chemicals that could cause bladder cancer.
Relate offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. Clients are asked to contribute towards the cost of their counselling sessions according to their income.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
An independent network that provides free advice about money, legal issues, housing health and social welfare issues. Often provides advice in English and other languages.
Appliances suppliers
B. Braun supply urine bags, catheters and other products.
Tel: 0114 225 9000
Email: info.bbmuk@bbraun.com
CliniMed has a delivery service for prescribed appliances.
Tel: 0808 239 0542 (freephone)
Coloplast supply stoma, continence, urology and wound care products. They also have booklets about using an internal urine pouch (continent urinary diversion) and essential things you should know before and after a urostomy.
Phone: 0800 220 622
Email: help@coloplast.com
Delivers supplies of prescription colostomy and ileostomy equipment. Also gives information on all areas of stoma care. Has a helpline for anyone who has a stoma.
Tel: 0800 282 254
Email: stoma.webcare@convatec.com
Dansac is a company that works with people with stomas to develop stoma care products and services. They aim to make life better for people living with a stoma and those who care for them.
Tel: 0800 581 117
A company that provides products for people with stomas. They have a delivery service for prescribed appliances.
Tel: 0800 521377 (Customer Care team)
They supply colostomy, ileostomy and urostomy products. You can request samples.
Tel: 01823 246 803
OakMed provide a range of stoma products. You can request a sample.
Tel: 0800 592 786
Peak Medical provide stoma and continence produts.
Tel: 0800 652 0424 (freephone)
Email: info@peakmedical.co.uk
Provide stoma products and information booklets.
Tel: 0800 318 282
Email: contactus@pelicanhealthcare.co.uk
Salts Healthcare supply a range of different stoma products. You can sign up to receive their newsletter.
Tel: 0121 333 2000
Email: hello@salts.co.uk
Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma such as an ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.
Telephone: 01205 723327
Email: lindabutler59@hotmail.com
Further support
Healthtalk.org
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
Find local cancer information and support near you
There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
Scotland
NHS Inform gives information about illness, treatments and NHS services for people in Scotland.
Wales
NHS 111 Wales gives health advice and information for people living in Wales.
Northern Ireland
The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland.
